Tuesday, September 29, 2015

Good Brain Days are the Best

*The Bird*

*243* <----cant make her move!

  It is a humid morning so I fear today will not be a good day after all. We have rain and a tropical system for this weekend also. I know already that my brain is not happy. But there is light at the end of the tunnel. I have my spinal tap this Friday morning. Hopefully I will get some answers about my IIH. I have finally just come to terms with it. I have it. It is a rare disease (1 in 100k) and there is  no cure. I have to roll with life and try to find sunshiney spots. I don't know what the cold air will do to me but it wont be humid. Less water in the air means less in my head. I have been so stubborn with fighting this diagnosis. Enough of that. I have the end of the month money coming in and I can buy lots of low sodium foods. I have to do this. *YES!*

  The picture up top is from the book Miss Peregrine`s Peculiar Children. I read the whole thing. I have not done that in over a year.  That is a big deal to me. I have the 2nd book in the series that I started yesterday, Hollow City. I will pick up the 3rd book soon. I have used a Kindle but there is something about reading from a book. The smell. The paper. The bookmark. You cannot replace that. Tim Burton is right now doing a film on the first book. If you are looking for something different to read, give it a go.

  The less humid weather has my head feeling pretty good. Those I am deeming Good Brain Days. That will let those that love me know that I always feel like shit but my brain feels good today. I can accomplish so much. I cut down almost the whole front bed yesterday. It was all bagged up too. I want to get the front done soon because I have a huge inflatable spider to put out there for October. I bought it from a neighbor for $5. Kinda excited to have it. I hope it fits out there nicely.  I have finished out the community garden. There are a few cherry tomatoes, peppers, and Swiss chard growing.  I go back periodically to pick. Once it gets cold, I will clean out the beds. I was thinking of planting some garlic.  I still want my own beds at home though.

  Last winter, I won like $75 from American Eagle Outfitters. It was in the form of gift cards. I bought the Man a pair of jeans and I found a pair of size 18 Boyfriend jeans for me. Alas, they didn't fit me. At all. Couldn't get them over my ass. I packed them away. I tried them on this past Sunday. They fit! They zipped! And no camel toe! I needed a belt! Woot!
See..that makes me happy but the scale doesn't fucking move...why is that? I am losing inches but not pounds. I am a numbers gal. I like to see lower digits. Extremely happy they fit. Just want to be able to say I weigh 223 instead.
 I guess once I have all the foods I need to sustain me here, the weight will drop off. Crossing those fingers.

I have to say that I hate this laptop. Yes, I am still using that ancient Dell that has a broken letter n that I have to paste when I type. I wish a computer fairy would drop a lappy at my doorstep. *wishing really hard* I had to just gripe cause it took me extra long to type this out. One day I will have extra money..one day.

Tuesday, September 15, 2015

Good news sucks sometimes


   Lots to post. I have been in a bad mood because of my appointment with the ear doctor and the cat scan. So I have been quiet.

Let`s start with the weather. It was hot hot hot. And the Lord made the rains come. We had not finished the Ark in time. We were deluged with 4 inches of rain in an hour. It was bad. And the worst part is me and Kid #2 were out in it! We made it home safe. I did not know it was gonna be that bad but when the flash flood warning came on my phone, we got out of dodge carefully as to not hydroplane, and made it home. We had a wee bit of water in the basement but it was okay. I have pictures too.

 This is Broad street. A major street in town. To the right of that pillar on the porch is a street that I use to get home. I say 20 minutes before this picture was taken, I was driving where that tractor trailer was to get home. It had not flooded like that when I was there.

This is the 7-11 down the street from my house. I knew not to go anywhere down there. How can you drive into that? The minute it hits the tailpipe, you are done. The rain ended soon after and it all dried up. Except for the junk piles in the yard. They stink. And because the Man stacked the crap next to the house, the basement stinks meaning I am gonna go insane.
 But my frie
nd man said he would take it all for the dump for us. And then I will bleach out the whole fucking area. I dont do mold. 

  So I have good health news and sucky health news. The cat scan looks really good. There is no fissures or holes in my skull. The seals in my skull are good. I do not need another surgery. Yay!
My symptoms that I have are basically what I have to live with. He still feels I have IIH. That the symptoms are because of IIH. I am so bummed out about it right now. I am back on the low sodium way of eating full force. I had been lax before because I was in major denial. So it is low sodium all the way for me. I will start back on the diamox after I have that spinal tap in early October. Then we will see what the neuro sees. If this is IIH, I will have to just live with it because that is all I can do.

  oh, appare
ntly I have really low Vitamin D. I started a 50,000 unit Vitamin D pill this week. I take it once every Sunday. Supposedly, the twitching and aches are probably because of it. My medications should work better too with me on that. 

  I think that is all for today. I was really down this past weekend because of the realization that I have a brain disease that will never go away. Kind of ironic that September is IIH awareness month,
 I k
now I should be more elaborate and fun with the post but this bitch aint feeling it. Maybe the next time. I hope you have a great Tuesday and the weather is cool for you.